RE: Parents with Children of special/high needs children support thread
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RE: Parents with Children of special/high needs childre... - 9/9/2008 9:55:42 PM
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uponeagleswings
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quote:
ORIGINAL: Auben
My oldest had digestive issues and was very colicky as an infant a friend with 7 children showed me how to lay him on his stomach to get some relief. I'd carry him face-down across my forearm.
I think I've heard this referred to as the football carry.
((Nicole))
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RE: Parents with Children of special/high needs childre... - 9/9/2008 11:44:12 PM
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nicole6598
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That's interesting Erin. Thanks for that.
Nath has been sleeping on his back since he was born, and he was wrapped too, so I think that wasn't helping him digest properly, and like Ryanne said can not help refulx babies.
Happy update!! Nath slept the WHOLE NIGHT!!!!!!!!!!!!!!!! Woo hoo!!!
How is everyone else doing? NDY got anymore results yet?
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RE: Parents with Children of special/high needs childre... - 9/10/2008 7:31:34 PM
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NotDoneYet
Posts: 285
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From: Virginia
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Nicole,
Thanks for asking! Right now we're just hanging...we're waiting for her glasses to come in...so I'm working like crazy so I can take off...I'm gonna call tomorrow about them. On the allergy/asthma front...the pulmno didn't find anything that alarmed him. So...it's more of watching and waiting...she's currently off all meds and inhalers...who knows. We go back to the allergist in 6 months, the pulmno if needed and I'm waiting for a GI referral.
The upside is that even with her GI problems, her weight is good...she just doesn't gain.
More when I know more...it's crazy!
NDY
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Remember, normal is just a setting on the dryer!
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RE: Parents with Children of special/high needs childre... - 9/11/2008 3:28:39 PM
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ladyingrace1979
Posts: 413
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From: Fresno CA
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Hi all,
I just discovered this thread so I thought I'd pop in and introduce myself. My name is Kim, I am a 44 year old mom to three girls. DH and I have a 13 year old, who technically qualifies as having special needs but they are relatively minor. The technical name for what she has is visual motor processing difficulty. Basically she has fine motor issues. She is developmentally normal, above grade level in language arts and on grade level in math. The only issue is her handwriting. She is on a 504 plan which allows her to carry her laptop with her and turn in things typed. She is also allowed extra time for testing and I write for her on math homework. Our twins on the other hand have developmental issues. They are 10, 11 in Dec. They were born at 32 weeks and had a lot of respiratory problems and lots of ear infections. We think that hindered their language development. They also have many of the autism spectrum behaviors but not a formal diagnosis. They function at about a 1st. or 2nd. grade level, many sensory issues and some difficulty retaining information, they also have some impulse control problems so we have to watch them carefully. We have no idea what they will be able to achieve and that frightens me. They are in a special ed. classroom with other kids like them. It is 4-6 but the kids are anywhere from kindergarten level to almost on grade level. So that's our little family. Oh and DH has MS. So it's never dull here.
Do you all know of a good site for worksheets and activities I can print out? The twins teacher doesn't give homework and my twins beg for work. Thanks
Kim Q
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RE: Parents with Children of special/high needs childre... - 9/11/2008 9:15:02 PM
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uponeagleswings
Posts: 1628
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quote:
ORIGINAL: ladyingrace1979
Do you all know of a good site for worksheets and activities I can print out? The twins teacher doesn't give homework and my twins beg for work. Thanks
Kim Q
Enchanted Learning is one of my favorites. They do require a subscription, but it is relatively inexpensive. They have lots of books and fill in the blank type pages at different levels.
Math worksheets that you can create and print out.
A list of links to printable worksheets- I haven't checked out everything on the list.
Hope some of that will work for your twins.
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RE: Parents with Children of special/high needs childre... - 9/12/2008 10:55:23 AM
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deb77
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From: Pennsylvania
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Hi everyone. I'm a mom to sixteen kids, soccerguy's eleven plus my own five. We blended our families three years ago.
Two of my sons have learning disabilities. My 12 yo has trouble with reading and spelling. My 11 yo has an extremely slow processing speed (15% and normal is 100%). Then we have a 10 yo with down syndrome. He cannot speak, but otherwise is pretty much an average boy. Our 6 yo daughter has 25% mosaic down syndrome. She has developmental delay of about 2 years. Otherwise, you'd never know her condition. The youngest, age 4, was born premature at 28 weeks and currently has developmental delay. He gets OT, and speech therapy. He was born blind in one eye and we discovered it when he was two. He now can see 20/60 out of that eye due to patching his good eye (20/30). Otherwise, this kid is right on track.
On top of these five kids, one teenager, age 16, has speech problems. No treatment so far.
Not to mention the others!
It's a lot of work, but really we are blessed to have easy kids to care for.
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Love is patient, love is kind... It always protects, always trusts, always hopes, always perseveres. Love never fails. 1 Co. 13:4-8
http://callmecrazy-momofsixteen.blogspot.com/
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RE: Parents with Children of special/high needs childre... - 9/14/2008 4:27:11 PM
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ladyingrace1979
Posts: 413
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From: Fresno CA
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O.K. I am seriously frustrated! One of my twins took a stick and scratched a smiley face into the back of our van. Then she took chalk and went over the scratches with white. Thankfully the scratches weren't deep and my hubby can buff them out. They just have the worst impulse control. Punishment seems to do no good at least to prevent things from happening! Now I'll have to limit them to the back yard only.
Grrr!
O.K. I'm better now.
Kim Q
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RE: Parents with Children of special/high needs childre... - 9/16/2008 12:08:03 PM
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coach_bob1
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From: West Chester, OH
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Hi y'all. It's been a while since I posted, so I thought I'd introduce myself. My wife and I have 3 daughters. I am a graduate student and my wife is a Disability Claims Adjudicator. The oldest one is 5 years old and has Pervasive Developmental Disorder-Not Otherwise Specified (PDD-NOS) This is on the autism spectrum. My DD is of average intelligence, but she gets stuck in scripts (she recited the Juicy Juice commercial the other day for 45 minutes and was UNABLE to stop) She attends PT, OT, and SLT once a week. We just moved from the Cincinnati area to Columbus. Our previous church was not as accepting of her situation. (they told us it was because she had a "sinful heart") We are currently looking for a new church, and one of the requirements is the workers have to be willing to work with my DD.
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RE: Parents with Children of special/high needs childre... - 9/16/2008 7:36:34 PM
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nicole6598
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Sandy- I am praying for you. Just remember she is the same Sissy she has always been, the label doesn't define who she is, it is there to help and support you to be able to help her achieve her highest potential. It will be different to another child who may have the same thing, but she is still your loveable adorable sissy, now you just know how to help her!!
NDY- praying while you wait :)
Hi to everyone else!!
Deb- wow, so many kids!! Amazing. Do you get good support from their schools and the health professionals you need?
Kim- have you ever spoke to someone about ways to help the twins control their behaviour or what you can do to help them?
Coach bob- Dear me, I hope you find a supportive church, that's just terrible!!
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RE: Parents with Children of special/high needs childre... - 9/16/2008 11:58:09 PM
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myka
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quote:
Our previous church was not as accepting of her situation. (they told us it was because she had a "sinful heart") We are currently looking for a new church, and one of the requirements is the workers have to be willing to work with my DD.
Oh, I am so sorry that they told you that. (it is one of the things that I 'hate') Anyway, it is important that the church be willing to accept people as they are... I have a friend who had 2 kids who were on the spectrum, and we spent a lot of time talking about the issues. I also have family members who were less than supported at their church when it came to their special needs children.
Sandy,
Honestly, borderline for Aspergers is not too bad... My perspective has always been that kids each have their own little quirks (some of them are diagnosable), and each have ways that they need to be treated -- adults do too. Sometimes, we don't even think about how different people need certain things or like things to be a certain way, but we all do. You are doing great -- you have sought help when you needed it. The evaluation is just finding out what is going on with her and how you can best help her (like Nicole said).
Are you homeschooling, Sandy?
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RE: Parents with Children of special/high needs childre... - 9/17/2008 6:26:00 PM
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NotDoneYet
Posts: 285
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From: Virginia
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We got Katie's glasses today!!!! YIPEE!!! 2 weeks of waiting...now she can see. We go back on the 15th of October to find out about patching.
I think I may have the answer to some of Katie's problems...we were wrestling on the bed the other night and she spit up...just like a baby with reflux...that would answer the episode of turning blue...but it doesn't answer the lower GI issues...
Well...waiting for the appointment with the ped gastro guy...
thinking about speech therapy...she's almost 4...and her speech is the worst of any of my kids. She's still sort of difficult to understand...I wonder if we could do that through the school system.
GEE...
Still hanging on...
NDY
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Remember, normal is just a setting on the dryer!
Ranting and raving: diaryofaravingmom.blogspot.com
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RE: Parents with Children of special/high needs childre... - 9/17/2008 8:09:08 PM
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nicole6598
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NDY lots of children at 4 years still have speech issues, can you work out what sounds in particular she has trouble with? I know I had kids that came to me at 5 years when they started school and by the end of the year they were speaking fine, but there were some others who did need specialised help. If you can isolate what sounds she has the most trouble with you could start on some things at home. My daughter (she has no special needs) has trouble with the blending sounds like "br" "dr" "fr" "tr" but its common for her age, in Uni we were taught that they don't expect them to really master those types of sounds until they are 6 or 7 years old.
YAY for glasses!!! Is she on any meds for the spitting up? Do you think she may have reflux? Any idea on how long you have to wait to see the gastro doc?
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RE: Parents with Children of special/high needs childre... - 9/17/2008 11:16:06 PM
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ladyingrace1979
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From: Fresno CA
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NDY, as far as the speech I am a big advocate of having assessments done as early as possible. If the lack of fluency is normal developmentally then you have nothing to worry about. But if there is an issue the sooner it is addressed the better. My oldest is developmentally normal but she had a slight speech delay, she was about a year behind. For her the solution was to have her in a specialized preschool with individual therapy only 1/2 of an hour each week. She was 2 when she started and at 3 she was 100% on track. At 5 she was ahead in her verbal skills.
As far as school districts, I tend to have assessments done outside of the school district, sometimes kids that are borderline are not given services when they could use them. I asked my pediatrician for an assessment and then went to the school district.
Kim Q
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RE: Parents with Children of special/high needs childre... - 9/18/2008 7:40:36 PM
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NotDoneYet
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From: Virginia
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Katie's speech...let's see...
r's, s's l's, blending sounds...she's still difficult to understand at times...
for example: "glasses" are "gwasses"
sleep is "fweep"
drink is "dwink"
Her vocabulary is pretty large, including "delicious", "disgusting" words like that...
BUT...
The next time we're at the pedi, I'll talk to him.
The gastro consult is still in the hands of her pedi. I called them...they will make the appointment for me at the children's hospital. (I'll NEVER pay those bills off).
The babysitter noticed a BIG difference in her today with her glasses...more interest in stuff around her....
This kid is a puzzle...good thing I like puzzles :)
NDY
_____________________________
Remember, normal is just a setting on the dryer!
Ranting and raving: diaryofaravingmom.blogspot.com
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RE: Parents with Children of special/high needs childre... - 9/18/2008 8:05:10 PM
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uponeagleswings
Posts: 1628
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From: Out here in the desert
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quote:
ORIGINAL: NotDoneYet
Katie's speech...let's see...
r's, s's l's, blending sounds...she's still difficult to understand at times...
for example: "glasses" are "gwasses"
sleep is "fweep"
drink is "dwink"
Her vocabulary is pretty large, including "delicious", "disgusting" words like that...
BUT...
The next time we're at the pedi, I'll talk to him.
NDY
Note that I"m not a speech therapist, but I do work with lots of kids. IME, those types of errors are still typical for her age. You can try getting her to practice the sound in isolation- for example singing "la la la" or saying tongue twisters that focus on a certain sound. With a large vocabulary she may enjoy those. You can sit in front of a mirror with her and have her try to imitate some faces/sounds that you make.
Surprisingly enough, getting glasses may improve her speech. She'll be better able to see how you shape your mouth to form certain words/sounds. I'm assuming that her hearing has checked out OK?
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RE: Parents with Children of special/high needs childre... - 9/18/2008 8:09:05 PM
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NotDoneYet
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Maybe I'm just comparing her to my other kids...by almost 4 they were all pretty easy to understand...
her hearing is excellent...and absolutely no ear infections :)
I think I'll request the screening though...just to put my mind at ease...
NDY
_____________________________
Remember, normal is just a setting on the dryer!
Ranting and raving: diaryofaravingmom.blogspot.com
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RE: Parents with Children of special/high needs childre... - 9/18/2008 8:18:32 PM
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myka
Posts: 814
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quote:
ORIGINAL: NotDoneYet
Katie's speech...let's see...
r's, s's l's, blending sounds...she's still difficult to understand at times...
for example: "glasses" are "gwasses"
sleep is "fweep"
drink is "dwink"
Her vocabulary is pretty large, including "delicious", "disgusting" words like that...
BUT...
The next time we're at the pedi, I'll talk to him.
The gastro consult is still in the hands of her pedi. I called them...they will make the appointment for me at the children's hospital. (I'll NEVER pay those bills off).
The babysitter noticed a BIG difference in her today with her glasses...more interest in stuff around her....
This kid is a puzzle...good thing I like puzzles :)
NDY
Re: speech. The 'l' sounds and 'r' sounds are toward the last to develop. I'm not sure about the 's' sound, but I think that typically develops earlier.
It is wonderful about the glasses, yeah for figuring things out!
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RE: Parents with Children of special/high needs childre... - 9/19/2008 6:13:31 AM
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nicole6598
Posts: 3818
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I agree with Myka and Stacy that those sounds don't appear to be shouting out anything major, they aren't expected to master those for atleast another 2 years. But you could do things with her at home like Stacy has suggested, even if the evaluation comes back saying she is in the normal range.
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RE: Parents with Children of special/high needs childre... - 9/19/2008 5:06:30 PM
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Mrs.Wifey
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quote:
ORIGINAL: NotDoneYet
Maybe I'm just comparing her to my other kids...by almost 4 they were all pretty easy to understand...
her hearing is excellent...and absolutely no ear infections :)
I think I'll request the screening though...just to put my mind at ease...
NDY
My brothers had problems with the same sounds and my mom used to make them say phrases like- "Lovely Lucy Loves to Let the Lions Lick her Lollipop" (obviously for L sounds). They had all totally outgrown those problems(or corrected them) by the time they were 6... neither of them had any speech therapy or other intervention.
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RE: Parents with Children of special/high needs childre... - 9/20/2008 3:20:35 PM
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myka
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quote:
ust got back from Marshall's (7 years old, facial Port Wine Stain and glaucoma) eye check. His pressures are back in the mid-30s (normal is 10-20) and they're sending us back down to the doctors at Shands. They put a shunt in his eye at Shands when he was 2 months old and it's worked very well. In fact we've spent so long in maintenance mode with the glaucoma that I'm reeling a little bit from this. It looks like we'll be facing surgery again. Throw this on top of his 14th or 15th laser treatment for the birthmark next week and I'm just emotionally spent.
I did have a bit of a God-moment on my way back to work after the appointment. My radio's busted, so I get lots of quiet time in while driving. I was crying (something I rarely do) when I noticed that the car next to me was blasting the radio and it was playing "Praise You in This Storm" by Casting Crowns. Just the message that I needed at that moment.
(((((Kat))))) It's okay to cry; it is a change that you weren't expecting. I'll be praying for you and Marshall.
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RE: Parents with Children of special/high needs childre... - 9/20/2008 6:24:22 PM
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nicole6598
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Kat- you and Marshall are in my prayers!!
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RE: Parents with Children of special/high needs childre... - 9/20/2008 9:25:38 PM
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littlemom5
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thank you for writing back. 
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RE: Parents with Children of special/high needs childre... - 9/23/2008 2:04:04 PM
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ladyingrace1979
Posts: 413
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From: Fresno CA
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Something has been troubling my mind lately. That is how do I know where my special needs kids are spiritually? Allison and Alyssa have gone to church since they were babies and they enjoy church. We are blessed to have a church family that not only accepts them but loves them just as they are. They are included in everything they are interested in, with a few modifications for their development. But to get them to talk about anything related to church or spiritual things just doesn't happen. They don't ask questions, they don't show any curiosity about God, so I have no idea where they are spiritually. Some details about them they are 10 years old, but they function somewhere around a first or second grade level. Their verbal skills are very low. They just don't talk much, about anything.
So I guess my question is this how do you know what they are thinking? Should I make a more formal effort to present the gospel? Any thoughts?
Kim Q
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